Representative Joe Cloud

Arkansas PANS/PANDAS Advisory Council — Jan. 2, 2020 (48:23)

Is that culture changing, or are there plans to change that culture? Yes, that's a plan,

Arkansas PANS/PANDAS Advisory Council — Jan. 2, 2020 (48:01)

committee members have any questions Dr. Cloud thank you Mr. Chair Dr. Penn I was intrigued by your initial comment that the some of the pediatricians basically don't believe in this syndrome is am I correct and I think so yes Okay. So with the establishment of this clinic, obviously you're going to need referrals in.

Arkansas PANS/PANDAS Advisory Council — Jan. 2, 2020 (13:06)

up here dr cloud uh representative joe cloud uh uams class of 82 dr wheeler actually worked me over a time or two in during clinicals i believe i remember that i bet he doesn't though i appreciate the appointment to this board and of course health care is near and dear to my heart and i look forward to what we can learn and what we can do thank you

Insurance & Commerce (Senate) — Jan. 16, 2020 (1:42:36)

providers or school nurses uh and even to families and parents the more they know about this and then it's on the forefront and they they think about it and then the quicker the diagnosis obviously the sooner the treatment and the better the outcome thank you thank

Insurance & Commerce (Senate) — Jan. 16, 2020 (1:42:05)

heard about thank you senator for that question I I can tell you I'm not directly involved in any gps gps type studies or things like that autoimmune diseases by definition are difficult and one of the best things we can do as a legislative body in my humble opinion is to get the word out and the more the health care providers whether it be the physicians or mid-level

Insurance & Commerce (Senate) — Jan. 16, 2020 (1:40:24)

right now is to get that information out to all health care providers to parents that perhaps have seen this in their families to other folks and other families and that's where we're started thank

Insurance & Commerce (Senate) — Jan. 16, 2020 (1:39:47)

Committees so we're looking forward to that as far as just to give you a little bit more information we talked about being on the forefront of things as far as arkansans we can be very proud i think that we are taking this initiative early and there is a multi-disciplinary clinic that's already open at arkansas children's hospital it's not formally been opened yet but it's already seeing patients and having an outcome so the the the main thing

Insurance & Commerce (Senate) — Jan. 16, 2020 (1:39:14)

couple Paul and Patricia Ryan not only did they develop early standards because their grandson was afflicted with this was misdiagnosed and mistreated so they have already laid some of the groundwork there's no reason to reinvent the wheel they are a tremendous resource for us and and they are going to personally be involved in this and be here and when that meeting can take place we are going to have a joint meeting with Senate and House Public Health Welfare and Labor

Insurance & Commerce (Senate) — Jan. 16, 2020 (1:38:44)

Dr. Rainey and Dr. Smith these are what I would consider our state experts on this condition both from UAMS and from Arkansas Children's Hospital. We are currently dividing up into two subcommittees to help educate health care providers and develop standard practice guidelines. The one great resource that we have that has come in to partner with us is this Arizona

Insurance & Commerce (Senate) — Jan. 16, 2020 (1:38:10)

Their personalities change, their behaviors change, and, again, the problem is it's misdiagnosed, and it's also not only slowly diagnosed, but then it's not treated properly, and different insurance companies will affect this diagnosis differently, and so we're trying to deal with that. We did hear at our organizational meeting from Dr. Vera Pandian, goes by Dr. Panda, which is very appropriate, I would think,

Insurance & Commerce (Senate) — Jan. 16, 2020 (1:37:38)

That is incorrect. Adults can get this too. We call that an autoimmune encephalopathy. So just be aware of that. We had our initial organizational meeting on January the 2nd. And, again, the reason that this council was developed was because this is a very underdiagnosed condition. All of a sudden, the person takes a 180-degree change in their mentation.

Insurance & Commerce (Senate) — Jan. 16, 2020 (1:37:06)

And it does have a tremendous effect on some Arkansas families that are or have been afflicted by this malady. So you can see on your handout, PANDAS, Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections. So you can read it and pronounce it now. I don't know if you can spell it all, but it's there. This is a little bit of a misnomer because this implies it just affects the pediatric population.

Insurance & Commerce (Senate) — Jan. 16, 2020 (1:36:31)

Thank you, Mr. Chair. State Rep. Joe Cloud, District 71. It's my privilege to give you a little update on what the PANDAS Advisory Council has done so far. As the chairman alluded to, Ms. Stapleton has a handout for you, so if you didn't get one of those, that'll give you the basis, and she'll be glad to get that if you'll waver down. I'm privileged to be a part of this Advisory Council. This is a very poorly understood disease in the state of Arkansas and nationwide,

Insurance & Commerce (Senate) — Feb. 19, 2020 (2:08:03)

applied by DHS yes those code

Insurance & Commerce (Senate) — Feb. 19, 2020 (2:07:56)

55 per call difference quick follow-up mr. sure thank you so just to be clear those codes were

Insurance & Commerce (Senate) — Feb. 19, 2020 (2:06:25)

you're recognized sir thank you mr chairman a lot of discussion about money today and in light of that mr kelly i'm just astounded by the fact of what i learned on the non-emergency and emergency codes being flipped so it's a very simple question who's responsible for that happening there's no telling how much money that has been lost over many many years with that so why wasn't it caught who was responsible for that thank you well i

Legislative Joint Auditing — Feb. 28, 2020 (14:26)

comments? Representative Cloud? Is it? Representative Hodges then.

Arkansas PANS/PANDAS Advisory Council — March 9, 2020 (37:55)

So we want to be able to do that. So just please let us know. Thank you, Dr. Representative Cloud. I hope

Arkansas PANS/PANDAS Advisory Council — March 9, 2020 (37:23)

And then also to what Representative Warren stated, again, to reiterate, a lot of these practitioners that have had some hesitancy in ordering all these labs, they don't want to have to eat the cost of those labs. So as we develop this, we want to make sure they're taken care of to be an advocate for the practitioner that is then going to refer to you folks.

Arkansas PANS/PANDAS Advisory Council — March 9, 2020 (37:05)

said that right. Thank you, Mr. Chairman. I just want to echo what Mr. Brumley said. A lot of the verbiage in this report has to do with children and dosages for children. So in no way, I just want to be reassured that we're excluding adults with an autoimmune encephalopathy.